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I am autistic -- a "high-functioning" autistic. Does that mean I'm smarter than you? Probably, but trust me, it doesn't show. What does show is that I am definitely different from most of you. Not better, not worse, just different.

I don't think I'll bother with medical definitions of autism, or the variety of syndromes that belong to the very wide spectrum of autism. Google it, Yahoo it, or just ask Jeeves, if you want the more concrete definitions of autism. For my purposes, I just want to share with you what it's like to be me.

My sensory nervous system is like the ultimate electronic espionage device, gone horribly wrong. Take my sense of touch, for example. I've been told that silk is soft and smooth, and I know a lot of people like it. I can't stand it, though. To my fingers, silk is as course as sandpaper (which is as course as pumice, which is as course as a low-guage rasp, which is as course... you get the idea). I can "feel" every single thread in a swatch of silk, individually, just as I can feel every hair in a fur coat. I avoid wearing a lot of clothing whenever possible for just that reason. Being dressed is like clothing myself in gravel.

My sense of hearing is really odd. It's not that I hear better than other people. In fact, I'm actually more than a little hard of hearing. Imagine, if you can, that you are a recording studio. In a recording studio, everything is recorded on tracks (i.e., each vocalist is actually recorded separately, as is each individual instrument -- or at least they can be). That is how I hear. When I listen to music, for example, I don't hear the blending of the instruments into chords, etc. I hear the trumpet apart from the cello apart from the viola. But I hear them simultaneously, without the "blending".

Visually, light tends to be brighter, "noisier". Motion has an almost special effects feel to it. It's harsh, clear, staccato. I am aware of each "frame" in a simple movement, like bending your finger.

Smell/taste is, for me, the least bothersome of my senses. Strong smells and tastes get my attention, to the point of distraction, but generally I don't believe I'm any more aware of smells than other people are. There are a few exceptions. Vinegar, for example, is a smell (and a taste) that I cannot abide in any way, shape or form. In fact, the smell of vinegar is actually painful to me. It makes my nose, throat and head hurt. Acetone would be another such smell (probably why I've never "huffed"). On the flip-side, some smells are unusually soothing to me (you won't believe this, but two of the most soothing smells to me are skunk and gasoline, though I don't go out of my way to smell either of them).

Inside, my brain is attempting to process all of this weirdly-received sensory input. A "normal" brain is a very efficient machine. When it hears a bunch of sounds, it blends them into a single experience, like a musical chord. When you see a tree, the brain acknowledges it as a tree, but it actually fills in certain details of the tree from "memory", rather than processing each "real" detail.

Not so with my brain. It tries to process, catalog, remember and "experience" everything just as I am receiving it. Needless to say, under those conditions, sensory input becomes overwhelmingly distracting. To avoid being driven insane by it all, my brain also comes with a kind of defense mechanism. It starts to shut down my conscious awareness of the inputs, thus making it appear that I am withdrawn and unaware of my surroundings. I'm not, but it looks that way to outsiders. More on that shortly.

Unfortunately, that particular defense mechanism isn't perfect. It doesn't always work. So I have other ways of coping, some of which I had to unlearn for my own safety. For example, pain is an amazing distractor. For some reason, pain supercedes all the other sensory input. As a child, I would sit with my back to a wall and slam my head against the wall repeatedly. That's one of the behaviors I had to unlearn (though even today, you might sometimes see me tapping or smacking myself on the head).

I also rock back and forth, almost constantly. For the sake of my own social development, my parents and teachers tried to make me unlearn that behavior. On that one, however, I rebelled and refused to be "trained". So even now, at 42 years old, if you see me in a meeting, at a restaurant, watching television, or even driving, you will see me rocking away.

The hardest part of being autistic, for me, is socializing. I don't do it well at all. First of all, social settings tend to be active, noisy, bright and smelly. Thus, I am automatically either distracted or "withdrawn". Others have often described me as cold, aloof, snobbish, etc., because they don't understand why I am not friendly and outgoing at social gatherings. The reality is that I simply can't be.

Additionally, because my brain is always so busy processing sensory input, and trying to protect me from the "overload", it has never spent much time learning how to interpret social interactions. I have a tendancy to miss non-verbal clues, for example. Even when I catch them, I don't usually understand them. Body language is lost on me completely. I am just as likely to misinterpret the meaning behind a smile or frown as I am to understand it.

Just as my brain has never really grasped how to interpret interaction with other people, it has also never really learned how to allow me to express myself in ways others can understand. As a general "rule", I rarely show emotion of any kind; that's where a lot of people get the picture of me as being cold or unfeeling. Nothing is further from the truth, though. I have emotions and feel them acutely. I just don't know how to get them "out there" for others to see.

When I do try to show my emotions, I will more than likely get it wrong. How it comes out is fairly random. It might be, for example, that I am feeling sympathetic about something I've heard someone say, something sad or painful. Rather than a "sympathetic" look, however, my sympathy may show up on my face as a joyful smile or an angry glare. I may giggle when I mean to cry, or cry when I mean to feign indifference. I have found, though, that the more comfortable I am in a given situation, the more likely it is that I might get the emotional expressions right.

For all of these reasons, and a few others, I'm a quiet person. I rarely talk. I don't like the way my voice sounds, for one. For another, I know I will only confuse people about where I'm coming from, because my tonal inflections probably won't match my words. I think that's also one of the reasons I write, and why I am so very verbose when I do write. It's a neutral way to communicate, and I can take my time to insure that my words mean what I feel. I have a lot to say, I guess.

I think my autism has enhanced my life in a lot of ways (music appreciation classes were amazing for me). It gets in the way of a lot of things, too. Making friends is difficult, for example; and music with lyrics is impossible for me to grasp. In all, though, I wouldn't change a thing.
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:iconsackermanmo:

Author's Comments

A look inside my head. Welcome to my world.

Comments


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:iconangelsaint11:
My husband is autistic, high functioning (asperger's). Many of the things you mentioned here are similar to his own experience. Autism is truly misunderstood...and honestly, I love my husband's autism. It's what makes him him. And autism has saved him before, for during an extremely abusive childhood he was able to wtihdraw into his world as to not be present for the pain he endured.
Thank you for writing this.

--
All souls last forever, so we need never fear goodbye
A kiss when I must go, no tears, in time we kiss...hello
:iconsackermanmo:
Thanks so much for sharing this. I wouldn't trade being autistic for anything. As you say, it's what makes me me, and I've come to like me a little :D

Sounds like your husband's childhood was much like mine, and I think I survived for the same reasons. Good on both of you for learning and loving and being.

--
The universe runs in cycles, meaning that focusing on the horizon means nothing because in the end all you're really doing is looking up your own ass, so just enjoy the walk.

-- David Dustin Walling
:iconfluey:
I've read this and had it regurgitated to me by my autistic friend, but I still can't feign understanding.
From what you say it's like a double edged sword. It's like a part of your essence, but not something like blue eyes or brown hair because it's not something purely physical. Nor is it like a rate to remember things because it's not something purely mental, but a mixture of the two.

I guess it's one of those things you have to have in order to understand.

--
Dueling is srious bisness D:<

You've acquired a license; you gain 30 pounds.
:iconsackermanmo:
While you may not be able to quantify the experience, you have certainly captured the essence of what it is to be autistic. The "condition" itself is based in bad (?) neuro-physiology. However, much of the coping mechanisms are purely a result of the autistic's personality. Hence the myriad ways we all express our autism.

I wonder how your autistic friend (I know him, by the way) would react to your use of "regurgitated". I love that word! :)

Thanks so much for reading. I appreciate it!

--
The universe runs in cycles, meaning that focusing on the horizon means nothing because in the end all you're really doing is looking up your own ass, so just enjoy the walk.

-- David Dustin Walling
:iconfluey:
I feel bad when autistic's "tweak". I want to help, but I know it's like a seizure.

Mirable Dictu ^^

You're welcome ^^

--
Dueling is srious bisness D:<

You've acquired a license; you gain 30 pounds.
:iconsackermanmo:
It can be kind of hard to watch. It's even weirder, though, to get two autistics together and one of them starts tweaking. The other will often follow suit. Happens to me and Multiminded all the time. I start, then he starts, or he starts and away I go. It's insane :D

But what's hardest is when the "tweak" goes to full-out fit. I hate that experience, but I have it a lot. I hate it even more when Multiminded does it, mostly because I know exactly what he's going through.

I feel bad for the NT's around us, though. They don't understand, and sometimes they try to "help". Oh my goodness, but that just makes things worse. Few understand that it's best just to let the fit play out, unless serious bodily injury is imminent.

Ah, well, I could go on all day, and you didn't sign up for that. Anyway, thanks for reading!

--
The universe runs in cycles, meaning that focusing on the horizon means nothing because in the end all you're really doing is looking up your own ass, so just enjoy the walk.

-- David Dustin Walling
:iconblack-halo69:
My wife told me to come over to your gallery and read this. I too am autistic and I loved reading this. I wish more people would understand us, perhaps if they could be in our minds for one hour...hell 15 minutes might do it. LMAO I am going to watch you. I think I will enjoy your writings! :-)

--
You are the strength, that keeps me walking.
You are the hope, that keeps me trusting.
You are the light to my soul.
You are my purpose...you're everything.
:iconsackermanmo:
Thanks for the great commentary (and for faving and watching ... I hope I don't disappoint).

I would love it if an NT could spend just 5 seconds in an autistic's mind. I'm still not sure they'd get it, though. It's just incomprehensible to most people that our brains are the massive mess of chaos they are and yet somehow we manage to remain sane (sort of ... grin).

My step-son is also autistic, and his behavior is currently evolving. It's driving my partner nuts, because the behaviors are all new and he worries that my step-son is mimicking more than actually experiencing a shift in behavioral mechanisms. For my part, I remember the shift in behavior during my teen years when stressors were at an all time high. I went from a quiet, but mostly calm autistic, to one who twitches and self-hits, etc., too. So it's just not that weird to me.

Ah well, one of my tendencies is to ramble and to provide info nobody asked for... and now that I've caught myself at it again, I'll stop for now.

Again, thanks for checking me out! Tell Angelsaint I said howdy :D

--
The universe runs in cycles, meaning that focusing on the horizon means nothing because in the end all you're really doing is looking up your own ass, so just enjoy the walk.

-- David Dustin Walling
:iconblack-halo69:
Ah, I am sure you won't disappoint. I have loved what I have read so far. You are a wonderful writer. I write to, but mine tends to be just my scattered thoughts. I figure most people don't understand them, but I have to get them out.

I agree, if an NT could live our lives for those 5 seconds, they would either freak out and be a slobbering mess in a corner OR they would FINALLY get us and how we think and feel. My whole life I have gotten people who think I am a snob, etc. because I am so aloof and shy or because of my looks. They just don't get it. I have a REAL problem with eye contact as well, so that makes things harder too. I think my shift in behavior started when I was about 11 or so, I started cutting, I think I cut to release a lot of rage inside of me because of the abuse that was going on, but I also have a fascination with sharp things and blood. Weird huh? I twitch, self hit, bang my head and rock back and forth (that drives some people insane LMAO), so I understand that too.

Don't worry about rambling with me, I like talking to people who understand me and I like lots of info. :lol: So feel free to talk to me anytime!!

I will tell Dori you said hello!

--
You are the strength, that keeps me walking.
You are the hope, that keeps me trusting.
You are the light to my soul.
You are my purpose...you're everything.
:iconsackermanmo:
Fun! My shift really started with puberty, I think (but that happened around 11, I think). I have always been a rocker, and I started banging my head (and sometimes my feet) into walls when I just a tyke. I got over the head & foot banging (parents didn't leave me much choice, but I made them fucking work for it ... giggle). I started self-hitting, sometimes biting, at puberty.

I don't bite any more, but I do still self-hit, especially on the back of my head. I still rock back and forth, and I also drive everyone around me crazy with that.

I do okay with eye contact when I'm comfortable with someone, but otherwise, I don't have a prayer of maintaining eye contact for even a fraction of a second.

I'm with you on the feeling thing. I am SOOOOOO sick of people thinking I have no emotions just because I lack the capacity to show them. If they had any idea how sharply I feel things, they'd be hitting themselves too! :D It's just too damned hard to get it all out there (except when I write), so I don't often bother.

I totally twitch, too. Partly from the autism, but also because I have a movement disorder (a bit like Parkinsons, but it won't kill me). I keep a rubber ball or a deck of cards handy when I need to twitch, because if I can get my hands busy before it gets bad, it doesn't usually get too bad to stand it.

Another aspect of my autism that drives me a bit nuts is that I take things so fucking literally most of the time. People say shit to me and I take it completely the wrong way. Drives my partner crazy because he tries to tell me jokes and I just don't get them. He'll say something like "A blonde went into a bar." And instead of waiting for the punch line, I'm like "Why did she go into a bar?" Or, and I swear I'm not joking, sometimes I'll take "bar" to mean like a pipe or a brick of gold or silver. And then I'm completely fucked, because I can't get it into my head how a blonde can walk in to a bar of gold. See what I mean? :D

The part I love about my autism is my step-son. His dad (my partner) can't talk to the kid, because they just don't make sense to each other. But I can talk to him all day long and it's like we share a brain. Again, drives my partner nuts (and sometimes flat out pisses him off), but it tickles me ;) I love having an autistic kid. He's more fun than my autistic siblings (I have 7 siblings and 3 of them are also autistic, but all higher functioning than I am).

Okay that's enough for this note. I just realized I've been cussing throughout (I have a mouth like a trucker when I choose to speak at all), so I hope I didn't offend you at all.

My name is William by the way, so feel free to address me as such. Bye for now.

--
The universe runs in cycles, meaning that focusing on the horizon means nothing because in the end all you're really doing is looking up your own ass, so just enjoy the walk.

-- David Dustin Walling

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November 1, 2007
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